Mateo’s Journey

 
 

Miracle for Mateo was initially established in February 2010 for the Paredes Family and their son, Mateo Sebastian Paredes. Baby Mateo was born with a rare congenital heart defect and experienced multiple life threatening complications after his first surgery.

Mateo was born on October 5, 2009, with Hypoplastic Left Heart Syndrome and Total Anomalous Pulmonary Venous Return. This meant Mateo needed a series of surgeries and medical procedures, required the assistance of additional oxygen, and numerous medications in order to remain stable.


Mateo's parents knew from 22 weeks gestation that their first son would need to be born at Children's Hospital of Philadelphia (CHOP), in order to be given the immediate attention and care from the experienced medical staff at CHOP's Special Delivery Unit. During Mateo's first four months of life at CHOP, he endured open heart surgeries, cardiac arrest, 15 days on an ECMO total life support machine, a pacemaker implantation, two strokes (that took Mateo's vision), and beginning a wait for a heart transplant. After realizing Mateo had experienced a second stroke during or after a cardiac catheterization, doctors agreed that it would be inhumane to continue to treat Mateo, and he was sent home on hospice care on February 8, 2010.

Mateo spent February, March and most of April at home with his family, being cared for day and night by his parents with hospice staff only a phone call away. Every two hours Mateo required one or more of 14 medications, supplements and/or his formula. Often, Mateo would need treatments with a nebulizer and frequent suctioning so he could breathe well, but his family thought the best treatments were hugs, love and "kiss therapy."


While his parents focused on caring for Mateo and keeping the family afloat financially, Mateo's extended family organized a benefit dinner that was held on April 16, 2010. On April 21, 2010, Mateo was having extreme difficulty breathing and seemed to be in critical condition. After his parents called 911, Baby Mateo was rushed by ambulance to Nemours A.I. duPont Hospital for Children in Wilmington, DE.

Mateo was evaluated by a new team of doctors and nurses, and was intubated and stabilized. While at Nemours, Mateo had another open heart surgery and his pulmonary veins were opened using a marsupialization technique. Unfortunately, when doctors learned that Mateo’s pulmonary veins were again narrowing, Mateo was sent home on hospice care for the second time on June 6, 2010.


While Mateo's parents continued to seek out alternative treatment methods and options for Mateo, on July 10, 2010, Mateo took his last breath at home surrounded by his family. Mateo Sebastian Paredes lived nine amazing months and brought a number of people closer to God, to believe in the power of prayer and faith. Those who knew him called him Super Mateo, the brave little baby boy born with only half a heart, who smiled and loved through all of his struggles and suffering.

Megan’s Journey

 
 

Megan Daddario was born on May 12, 1992 with a Complex Congenital Heart Defect known as Double Outlet Right Ventricle. In other words, she was born with a single ventricle—or “half a heart” as she referred to it.  By only 18 months old, Megan already underwent three open heart surgeries.  Following this difficult time, Megan was able to live a wonderful healthy life. Despite having  only “half a heart”, Megan had an amazing love for others, especially those with heart issues.


Megan was born in Bridgeton, NJ on May 12, 1992 and attended Stow Creek, Shiloh and Hopewell Crest School where she graduated from 8th grade in 2006. Megan spent her time being an active member of her community in Shiloh, NJ. Before her graduation from Cumberland Regional High in 2010, she was an officer in Peer Mediation and Peer Leadership as well as manager of the baseball team. Outside of school, she volunteered her time with the South Jersey Healthcare Regional Medical Center and as a certified NJ EMT. Megan worked as an aide with the Toy Box Preschool and also with the Greenwich Rescue Squad.


Megan was a member of the Sharptown United Methodist Church and volunteered at Jersey Oaks; the Seventh Day Baptist Camp in Alloway Creek.  She loved playing baseball and softball and was a member of the West Cumberland Little League. Megan graduated from Cumberland Regional High School in June 2010. Following graduation she attended Eastern University in Pennsylvania in the fall, where she was planning to obtain her bachelor’s degree in nursing.


Megan loved Baby Mateo from the moment his name was mentioned in church and knew she wanted to do whatever she could to support Mateo and his family. Little did she know that less than 6 months following Mateo’s passing, she would be facing a life threatening situation of her own.  In December 2010, Megan began to experience fevers and by February 2011 had developed Non-Hodgkin's Lymphoma.  Megan fought a very hard battle until she went home to be with her God on June 16, 2011.


In the 19 years of her life, Megan brought people together with her spirit and courage to live life to the fullest.

About Miracle for Mateo

Miracle for Mateo is a 501(c)(3) public charity nonprofit organization established in 2010. Miracle for Mateo began as a small group of grieving, caring, inspired family and friends who gathered around the Paredes Family's dining room table to discuss children with life threatening illnesses and their families, and to plan and organize events to help - all the while honoring and remembering Baby Mateo. Miracle for Mateo continued to grow in 2011 when Carman and Beth Daddario, along with a team of volunteers from Cumberland County, NJ, partnered with the organization to honor and remember Megan Daddario by helping families.

Today, Miracle for Mateo provides financial support for families with dependent children who: have complex congenital heart disease or life threatening illness, and are struggling through a lengthy hospitalization, waiting for organ transplant, or living at home on hospice care.

Miracle for Mateo accepts applications monthly and reviews completed applications on the third Tuesday of each month. Miracle for Mateo offers support to families who have a child receiving medical treatment in the Tri-State area (NJ, DE and PA) by providing funds for: hospital cafeteria meals, utility bills, living expenses, gas, and other travel expenses. Please click on the For Our Families tab above to fill out the application for funding and support online.

At this time, Miracle for Mateo does not provide funding for headstones, funeral costs or electronic devices such as iPads or laptop computers.

We aim to help families manage life, while they wait on their miracle.

Your generous contributions are tax deductible to the fullest extent permitted by law. Thank you.

 
 

About Us

Miracle for Mateo, a registered 501 (c)(3) nonprofit organization, was initially established in February 2010 for the Paredes Family, after their son, Mateo Sebastian Paredes, was born with a rare congenital heart defect (CHD) and experienced multiple life threatening complications after his initial surgery.

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Address: Miracle for Mateo, PO Box 101, Shiloh, NJ 08353
Email: miracleformateo@yahoo.com

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